tag:blogger.com,1999:blog-13578719586337424032024-03-05T05:08:32.557-08:00Tina CalabroWriter and Speaker,
Specializing in
Disability Issues, Awareness and Support
Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1357871958633742403.post-13493487576624479892018-09-24T12:49:00.000-07:002018-09-25T10:09:59.303-07:00Visit my redesigned website at a new address!You will be automatically redirected in 3 seconds.<br />
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If you aren't, the new address is <a href="https://pittsburghdisabilityconnection.com/"><b>pittsburghdisabilityconnection.com</b></a>Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com0tag:blogger.com,1999:blog-1357871958633742403.post-78750856387768211882018-07-23T12:03:00.002-07:002018-07-25T06:52:13.553-07:00<br style="background-color: white; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13.2px;" />
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<br /><a href="https://www.publicsource.org/as-the-28th-anniversary-of-the-americans-with-disabilities-act-approaches-pittsburghs-city-government-is-poised-to-make-the-city-more-disability-friendly/">As the 28th anniversary of the Americans with Disabilities Act approaches, Pittsburgh city government is poised to make the city more disability-friendly</a></h2>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB82pkPoQUBQIuHYna8YN7EL1i7CwyOYAcLhQoETpaf9naDR2b9g7Eeld1H3AC7wSGzpuMj0U_G7BP46nxUr3qLbhtQlmtIAnxwj3nk3CiNYcJJ1ZeDvu_o4Eo1R4oNwpCE5yhPBHlO_s/s1600/AlisaGrishman-01-1170x731.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="731" data-original-width="1170" height="248" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB82pkPoQUBQIuHYna8YN7EL1i7CwyOYAcLhQoETpaf9naDR2b9g7Eeld1H3AC7wSGzpuMj0U_G7BP46nxUr3qLbhtQlmtIAnxwj3nk3CiNYcJJ1ZeDvu_o4Eo1R4oNwpCE5yhPBHlO_s/s400/AlisaGrishman-01-1170x731.jpg" width="400" /></a></div>
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<span style="background-color: white; color: #7d8185; font-family: , serif; font-size: 15px; font-style: italic;">Asked how she would rate Pittsburgh as a disability-friendly city, Alisa Grishman said, “I’d give the city six out of 10, pretty good but not perfect.” Grishman is founder of Access Mob Pittsburgh, an accessibility advocacy group, and a member of Mayor Bill Peduto’s advisory group for Complete Streets. </span></div>
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<span style="background-color: white; color: #7d8185; font-family: , serif; font-size: 15px; font-style: italic;">(Photo by Ryan Loew/PublicSource)</span></div>
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Recently, I wrote an article for <a href="http://publicsource.org/">Public Source</a> about local disability rights activists' decades-long advocacy for solutions to the Pittsburgh's "one-step" problem -- that is, the single step that prevents wheelchair users from entering many businesses in city neighborhoods.<br />
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The city, likewise, has looked for ways to encourage businesses, as public entities, to remove entry barriers and meet their responsibility under the Americans with Disabilities Act (ADA). As a federal civil right law, the city cannot enforce the ADA or force businesses to create accessible entries. The ADA is a complaint-driven law. Citizens file complaints with the U.S. Department of Justice.<br />
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Advocates understood that the city has been part of the one-step problem. Following the Pennsylvania Uniform Commercial Code (UCC), the city issues building permits to businesses. These permits require 20 percent of construction budgets to cover ADA improvements, but the UCC does not prioritize which ADA improvements must be done. Consequently, many businesses have installed accessible restrooms and other ADA features, while retaining a step at the entrance. <a href="http://oaklandforall.org/">Oakland for All</a>, an accessibility advocacy group, has identified 300 examples of this outcome in city neighborhoods.<br />
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Advocates approached City Councilwoman Deb Gross for her support of a change in the city's building code. On July 10, Gross proposed legislation that requires businesses to create a "zero-step" public entry, when none exists, during renovation. A public hearing on the legislation will be scheduled for September. If City Council passes the legislation, the state Department of Labor and Industry must approve the change.<br />
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Mayor Peduto said he supports the change and, furthermore, would like to see the adoption of the accessible entry standard in the state building code. Additionally, he has proposed allocating $100,000 to the city's <a href="http://pittsburghpa.gov/dcp/ada/one-step.html">One-Step</a> program, which helps business owners remove entrance barriers.<br />
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If the city's appeal to change its building code is successful, Pittsburgh will move "one step"closer to becoming a disability-friendly city. The collaboration of the advocates and city officials on the current issue is heartening, but advocates and officials agree the city is not "there" yet.<br />
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<br />Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com0tag:blogger.com,1999:blog-1357871958633742403.post-83731172937800203302018-03-30T15:45:00.001-07:002018-03-31T08:23:00.600-07:00"Inclusive Higher Ed" programs opening doors to young adults with intellectual and developmental disabilityRecently, I wrote an <a href="https://www.publicsource.org/meet-colton-a-student-with-down-syndrome-who-plans-to-take-part-in-the-wave-of-inclusive-higher-ed-programs/">article</a> about "inclusive higher ed" programs for <i>Public Source</i>, a digital publication that covers the Pittsburgh region. The focus of the article is Colton Vazquez, a senior at Pittsburgh Allderdice High School, who has decided to attend the "Rock Life" program at Slippery Rock University.<br />
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<tr><td class="tr-caption" style="text-align: center;">Colton Vazquez with his acceptance letter from Slippery Rock University. </td></tr>
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I first heard about Colton's college aspirations last year when his mother, Candy Vazquez, posted on Facebook about their visits to Slippery Rock, Millersville and E. Stroudsburg in Pennsylvania, as well as Western Carolina and the University of Central Florida. Having taken my son, Mark, to see Millersville's inclusive program last year as well, I was curious about Colton's journey.<br />
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The number of inclusive higher ed programs is growing in Pennsylvania. There are now ten (see complete list in <a href="https://www.publicsource.org/meet-colton-a-student-with-down-syndrome-who-plans-to-take-part-in-the-wave-of-inclusive-higher-ed-programs/">article</a>). A decade ago, there were two. Each program is a little different from the others. Most are defined as non-degree programs for students with intellectual or developmental disability. The <a href="https://thinkcollege.net/">Think College</a> website is the national resource for these programs. In Pennsylvania, the <a href="http://dreampartnership.org/">Dream Partnership</a> and <a href="http://www.millersville.edu/pihec/">PA Inclusive Higher Education Consortium</a> are the go-to's for info.<br />
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Even though my son decided to keep attending Community College of Allegheny County rather than transfer to another school, I'm glad we visited the inclusive higher ed program at Millersville and learned more about the opportunities and support they offer.<br />
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Here in Western Pennsylvania, there are just two inclusive higher ed programs -- Slippery Rock (Lawrence County) and Mercyhurst (Erie). Duquesne University's program is expected to start in the next year or two.<br />
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We need more colleges in Western Pennsylvania to open their doors to all who want to learn. I hope the colleges are listening.<br />
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<br />Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com0tag:blogger.com,1999:blog-1357871958633742403.post-91808920376972076402017-11-09T20:59:00.000-08:002017-11-10T10:39:12.876-08:00<h2>
Carving out time to listen our son's vision for his life</h2>
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We spend hours together every day and, yet, how much do we know about how our 22-year-old son thinks about his life and what he wants for his future? </div>
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After more than two decades of parenting, have the lines blurred between what we want for our son and what he wants for himself? Are we ready to whole-heartedly support his vision?<br />
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These are the questions I have been asking myself -- and the reason I asked the PA Family Network to offer a local workshop on LifeCourse tools. </div>
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The PA Family Network is the go-to for information about this person-centered process. Melissa Morgan, the Southwest Coordinator for PA Family Network, will present the workshop on Wed., Nov. 15, 5:30 to 7:30 pm, at East Liberty Carnegie Library, 130 N. Whitfield St. (15206).<br />
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Here's the info:<br />
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Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com0tag:blogger.com,1999:blog-1357871958633742403.post-32210423577911861492017-09-12T18:47:00.000-07:002017-09-14T10:59:32.531-07:00Facing the Big Question: How will our son fare when we are no longer around? How to find help – and some measure of control<div class="MsoNormal">
<span style="font-family: "verdana" , sans-serif; font-size: large;">As parents of a young adult with significant disabilities,
one question is never far from our minds: What will our son’s life be like when
we are gone or simply unable to participate in his care?</span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">A little about our son:</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Mark is 22 and has cerebral palsy. He has many abilities as
well as disabilities and medical conditions that require one-on-one support.
My husband and I — both of us in our 60s — are the primary caregivers. Habilitation
aides and nurses also provide support several hours a week.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Mark is creating an interesting life for himself. He’s a
student at Community College of Allegheny County with the goal of finishing a
certificate in social work foundations and getting a job. He’s active in campus
clubs and volunteers at the VA Hospital. He has an active social life and manages
his personal care aides very well.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">As Mark becomes more independent, paid caregivers will take
on more of the day-to-day care that my husband and I provide. But looking ahead
to a time when we are not in the picture, we wonder who will be provide the unconditional
love and support that ensures that Mark has the life he wants, has the final
say all decisions that affect him, and is safe?</span></span><br />
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<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"></span><span style="font-family: "verdana" , sans-serif;">With these questions in mind, my husband and I — along with
Mark and his older brother Paul — are engaged in future planning.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">There are many ways to approach this process (see resources below).
We began by choosing an attorney with a specialty in special needs and elder
law. The first step was updating our wills and power of attorney documents,
which were 15 years old. (Our attorney suggests updating these documents every
five years or when there’s a significant life change.) We also asked our attorney
for advice about wills and power of attorney documents for our sons.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">The next step, much more complex, is to write a detailed letter
of intent. This letter will state our wishes, particularly those concerning
Mark’s care. The letter of intent is not binding, but is intended to provide
guidance.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Most important, we need to talk to our sons about what <i style="mso-bidi-font-style: normal;">they </i>want. For Mark, who uses a
communication device and requires more time to express his thoughts, a
structured process seems the right way to go. Mark participated in
“person-centered planning” (see below for definition and resources) when he
began the transition part of his IEP at age 14. Now it’s time for another,
focused on his preferences as a young adult.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">As a graduate student, our older son Paul is still in the
process of planning his career, including where his next job will locate him. We
will ask him to share his thoughts and feelings about participating in Mark’s
care. We are a small family, so we will be looking to include extended family,
friends and trusted agencies in the vision for Mark’s quality of life. Creating
a non-profit “microboard” (see below for definition and resources) is an
option, but we are more likely to do this less formally through the letter of
intent.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Doing all this planning is daunting to say the least, but we
know it’s necessary. There’s no guarantee that things will turn out as we plan —
anything could change at any time —<span style="mso-spacerun: yes;"> </span>but going
through this process seems to be giving all of us a sense of having some
control.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">If you’ve been thinking about future planning but need a
boost to get started, here are some local resources:</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;"><b style="mso-bidi-font-weight: normal;">Future Planning Legal
Clinic </b><span style="mso-bidi-font-weight: normal;">(Note: The Legal Clinic is completely full at this writing, but read on for how to get on a waiting list)</span></span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><b style="mso-bidi-font-weight: normal;"><br /></b></span><span style="font-family: "verdana" , sans-serif;">ACHIEVA Family Trust, through grants provided by Allegheny Bar Foundation and United Way of Southwestern PA, is offering a <b style="mso-bidi-font-weight: normal;">Future Planning Legal Clinic</b> on Oct. 3,
2017, from 9 a.m. – noon.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Local attorneys who are experienced in special needs
planning will be available for 30-minute appointments during which they can
help attendees develop a preliminary future planning strategy. Topics of
discussion can include wills, guardianships, power of attorney, representative
payee, special needs trust and ABLE accounts.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">The purpose of the c</span></span><span style="font-family: "verdana" , sans-serif; font-size: large;">linic is to provide a no-cost initial
consultation after which attendees are free to schedule a follow-up appointment
to draft document. To place your name on a waiting list for an appointment, </span><span style="font-family: "verdana" , sans-serif; font-size: large;">contact Amy
Chill at 412-995-5000 x 414, or </span><span style="font-family: "verdana" , sans-serif; font-size: large;"><span class="MsoHyperlink"><span style="mso-fareast-font-family: "Times New Roman";">achill@achieva.info.</span></span></span><br />
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<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Future Planning for
Special Needs</span></span></h2>
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">ACHIEVA Family Trust and ACHIEVA Advocacy, through a grant from United Way of Southwestern PA, are offering a Fall
2017 speaker series called “Future Planning for Special Needs.” Sessions are
held at ACHIEVA headquarters at 711 Bingham St., South Side (15203) or can be
accessed via live webinar. To register, contact Patty Yerina, 412-995-5000<span style="color: #333333;">, </span><a href="mailto:pyerina@achieva.info"><span style="color: #0078c1;">pyerina@achieva.info</span></a></span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><a href="mailto:pyerina@achieva.info"><span style="color: #0078c1;"><br /></span></a></span><span style="font-family: "verdana" , sans-serif;">Friday, September 22</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">What’s New with the Office of Developmental Programs (ODP)?</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Waiver Renewals for the Consolidated and PFDS Waivers,
including the new services</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">9-11 a.m.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Speaker: Kristin Ahrens, Director, Bureau of Policy and
Quality Management, ODP</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Friday, Oct. 3</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Ten Things You Need to Know about Special Education</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Program followed by free private sessions where you can consult with a special
education attorney. </span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">5-9 p.m.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Speaker: Jeff Rider, Esq., Ruder Law, a Pittsburgh-based
firm that represents parents of students with disabilities in school matters throughout
Western Pennsylvania. Additional attorneys from Ruder Law will be attending.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Friday, Oct. 13</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">“I Want to Work and Keep my Benefits”</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">9-11 am</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Panel Discussion:</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Bill Frase – Assistant Director of Community Employment,
ACHIEVA</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Joy Smith, Area Manager, AHEDD (A Benefits Counseling Resource
Organization)</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><span class="MsoCommentReference"><span style="mso-special-character: comment;">OVR </span></span> – speaker to be determined</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Josie Badger, Campaign Manager, #IWantToWork</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Friday, Nov. 10</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">What’s new with Special Needs Trusts and ABLE Accounts?</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">9-11 a.m.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Kelly Davis, The Pennsylvania Treasury ABLE Program</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Jacqueline Connell, Esq., ACHIEVA Family Trust Attorney</span></span><br />
<span style="font-family: "verdana" , sans-serif; font-size: large;"><br /></span>
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif;">Finding a Special
Needs Attorney</span></b></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">The Allegheny County Bar Association has a legal referral
service. Call 412-261-5555.</span></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">The Disability Rights Network of Pennsylvania can provide
information and resources on estate planning, guardianship and power of
attorney. Call 412-391-5225.</span><span style="font-family: "verdana" , sans-serif;"><br /></span><b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif;"><br /></span></b></span><br />
<b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif; font-size: large;"><br /></span></b>
<span style="font-size: large;"><b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif;">Person-Centered
Planning <span style="mso-spacerun: yes;"> </span></span></b></span><br />
<span style="font-size: large;"><span style="font-family: "verdana" , sans-serif;">Person-Centered Planning is a team process that helps an
individual identify a vision and goals for the future. To find a certified
professional to facilitate a plan, visit <a href="http://www.learningcommunity.us/network.html">www.learningcommunity.us/network.html</a></span><span style="font-family: "verdana" , sans-serif;"><br /></span><b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif;"><br /></span></b></span><br />
<b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif; font-size: large;"><br /></span></b>
<span style="font-size: large;"><b style="mso-bidi-font-weight: normal;"><span style="font-family: "verdana" , sans-serif;">Microboards</span></b></span><br />
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;">A Microboard is a “small non-profit corporation
that functions as a provider agency and is formed with the specific intent to
support only one individual with a disability.” (source: Office of
Developmental Programs Bulletin 00-07-04)</span></span><br />
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><b>Future Planning Guide</b></span></span><br />
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;">ACHIEVA offers a "Special Needs Personal Planning Guide." To get a copy, visit </span></span><br />
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;">https://www.achieva.info/planning-guide</span></span><br />
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: large;"><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span><span style="background: white; color: black; font-family: "verdana" , sans-serif;"><br /></span></span><br />
<h3>
<span style="background: white; color: black; font-family: "verdana" , sans-serif; font-size: large;"><b>Have an experience or resource to share? Comment below.</b></span></h3>
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</style>Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com1tag:blogger.com,1999:blog-1357871958633742403.post-41496575078930153052016-10-26T12:30:00.000-07:002017-09-12T19:12:28.441-07:00The “Bus Stopped Coming” (literally and figuratively), and Now I’m Spending Way Too Much Time Behind the Wheel<div class="separator" style="clear: both; text-align: center;">
</div>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Call me naïve, but I never realized how much driving I'd be
doing after my son Mark graduated from the school district five months ago. I
have essentially taken over as bus driver.</span><span style="font-family: "trebuchet ms" , sans-serif;"></span><br />
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><o:p></o:p></span></div>
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<br /></div>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">He received terrific travel training at the City
Connections transition program. He's taken dozens of rides on Port Authority
buses and ACCESS. But since he graduated, he hasn’t taken the bus or
ACCESS even once. <o:p></o:p></span></div>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Why? Because he needs one-on-one support during the commute.
He has a support person who meets him at Community College of Allegheny County
for classes, but finding an aide to assist him to and from school on a bus
or on ACCESS has eluded us. The driving time to CCAC plus the waiting time
involved adds up to at least 15 hours of my time per week. <o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Mark’s supports coordinator told us that we could ask for
mileage reimbursement as part of his Independent Support Plan, but I’d prefer
getting the time back rather than the reimbursement. <o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<b style="mso-bidi-font-weight: normal;"><span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Has anyone figured this out? </span></b></div>
<div class="MsoNormal">
<b style="mso-bidi-font-weight: normal;"><span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><br /></span></b></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">I reached out to other families to see if they are facing post-transition transportation
issues and what kinds of solutions they've figured out. Or not.
<o:p></o:p></span></div>
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<br /></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Rhonda and her daughter Molly were smart to look for a
post-transition aide before Molly graduated from school district services this
year. Through networking and the help of the City Connections transition
program, they found and trained the right person for the job -- a retired
person who drives Molly (in the family's wheelchair van) from their northern suburb to Oakland four days a
week for volunteer jobs. ACCESS and Port Authority were not viable options for
a travel between home and Oakland because of logistics, Rhonda said. <o:p></o:p></span><br />
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><br /></span>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Mary Ann and her daughter Nicole have solved the transportation issue by hiring experienced aides who drive the family car to take Nicole to her volunteer job and other activities. Nicole and her aide also use the suburban "park and ride" feature of the "T" for recreation in the city. "The aides do a lot of driving," she said, adding that the family sets a high bar for safe driving practices. </span></div>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Lynn and her daughter Abby, who live in Butler County, have
used a combination of transportation resources since Abby graduated from school
district services in 2011. Two of the programs Abby has participated in were in
neighboring counties (one in Allegheny and one in Beaver) so she took a taxi to
each because the Butler County paratransit system cannot cross county lines.
Lynn said the taxi was costly – about $200 per round trip. Although the cost
was covered by waiver, a more cost-effective solution would be to allow paratransit
to cross county lines, Lynn said, adding that a conversation has begun in
Butler County to try to address this issue. Abby just landed a job in Butler County and she will use
Butler paratransit to get there. However, because the paratransit ends at 3 pm,
another form of transportation will be needed for return trips.</span></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><o:p></o:p></span></div>
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<br />
<span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;">-Barb and her son William, who graduated in 2011, have found a reliable method for William to get to his day program: a standing order with ACCESS, which they have found to be very reliable. William also travels with an aide on Uber for appointments and other single trips. The family is looking into using ACCESS for those trips in the future.</span><br />
<span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;"><br /></span>
<span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;">- Candy's son Colton attends a city high school and is already dealing with complicated transportation issues involving his three jobs in the East End. Candy said Colton is not eligible for ACCESS because he's been fairly successful on public buses. However, he's not completely ready to handle problems that might come up when using the bus. </span><span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;">The family does a "whole lot of juggling" to ensure rides, and needs to find a better system going forward. Candy would like to find a consistent Uber driver. </span><br />
<span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;"><br /></span><span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;">- Robie's young adult daughter and Judy's young adult son use Sierra Transportation (an alternative to Port Authority ACCESS) for their standing-order rides to day programs.</span><br />
<br />
<br /></div>
<div class="MsoNormal">
<b style="mso-bidi-font-weight: normal;"><span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Transition-to-Adulthood Take-aways:</span></b></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><o:p> </o:p>-Figure out the post-transition realities of transportation
before graduation.</span></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-If using a one-on-one aide, find someone
who can drive your vehicle in addition to providing support on site, rather than
splitting the job into two. <o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Network hard to find the right person for a job that requires driving a family vehicle. <o:p></o:p></span></div>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Problem solving is needed to address “crossing county
lines” paratransit issues.</span><span style="font-family: "verdana" , sans-serif;"> </span><o:p></o:p><br />
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">-Port Authority ACCESS is not the only paratransit system covered by waiver in Allegheny County. Sierra Transportation is another. </span><br />
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<span style="font-family: "arial" , "helvetica" , sans-serif; font-size: large;"><b>For Further Exploration:</b></span><br />
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Transportation options like Uber and Lyft are emerging as an alternative to ACCESS for people who can use standard vehicles. For people who have ID/DD waivers, what about a "card" with a set amount of funds for this kind of service (similar to an Medicaid EBT card for food assistance)? A potential niche may exist for Uber or Lyft drivers who specialize in serving passengers with disabilities. </span><br />
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><br /></span>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Do taxi companies who transport people with disability across county lines charge exorbitant prices for the service because it's covered by waiver funds?</span><br />
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><br /></span>
<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;">Are there other waiver-covered paratransit services besides ACCESS and Sierra Transportation?</span><br />
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<b style="font-family: 'trebuchet ms', sans-serif; font-size: x-large;">Have an experience or idea to share? Comment below.</b><br />
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: large;"><b><br /></b></span></div>
Tina Calabrohttp://www.blogger.com/profile/16471026172146279522noreply@blogger.com8